M-7465-AC-ACC

Variant summary

Our verdict is Pathogenic. The variant received 7 ACMG points: 7P and 0B. PS4PS3_SupportingPP1_Moderate

This summary comes from the ClinGen Evidence Repository: The m.7471dup variant in MT-TS1 has been reported in >16 unrelated individuals with primary mitochondrial disease across several haplogroups. This variant is most commonly associated with sensorineural hearing loss however affected individuals can also have other features. Affected individuals have been reported with features including MELAS, cerebellar ataxia, myoclonus, epilepsy, white matter disease, intellectual disability, cerebellar atrophy, exercise intolerance, and hypotonia; and this variant has been seen in affected individuals in the homoplasmic and heteroplasmic states (PS4; PMIDs: 7581383, 9708714, 9832034, 9778262, 9778273, 10094190, 15482956, 11378827, 15292920, 15482956, 11378827, 15292920, 1533431, 16368237, 17637808, 15833431, 16368237). This variant segregated with disease in multiple affected members in multiple families and several healthy family members had lower to undetectable levels of the variant (PP1_moderate, PMIDs: 7581383, 9708714). Cybrid studies supported the functional impact of this variant (PS3_supporting; PMID:10545608). There are no de novo occurrences to our knowledge. There are no in silico predictors for this type of variant in mitochondrial DNA. In summary, this variant meets criteria to be classified as likely pathogenic however this Expert Panel elected to modify the classification to pathogenic given the overwhelming evidence of pathogenicity. Furthermore, the mitochondrial DNA variant specifications are known to not be optimized for pathogenic variants that tend to be homoplasmic in nature, have reduced penetrance, and/or variants that are insertions. This classification was approved by the NICHD/NINDS U24 ClinGen Mitochondrial Disease Variant Curation Expert Panel on November 14, 2022. Mitochondrial DNA-specific ACMG/AMP criteria applied(PMID:32906214): PS4, PP1_moderate, PS3_supporting. LINK:https://erepo.genome.network/evrepo/ui/classification/CA214937/MONDO:0044970/014

Frequency

Mitomap GenBank:
Absent

Consequence

TRNS1
unassigned_transcript_4800 frameshift

Scores

Clinical Significance

Pathogenic reviewed by expert panel P:12O:1
MM-/-DMDF-modulator,PEM-/-AMDF-/-Motor-neuron-disease-like

Conservation

PhyloP100: 3.93

Publications

4 publications found
Variant links:
Genes affected
TRNS1 (HGNC:7497): (mitochondrially encoded tRNA serine 1 (UCN))
MT-CO2 (HGNC:7421): (mitochondrially encoded cytochrome c oxidase II) Contributes to cytochrome-c oxidase activity. Predicted to be involved in mitochondrial electron transport, cytochrome c to oxygen and positive regulation of vasoconstriction. Located in mitochondrial inner membrane. Part of respiratory chain complex IV. Biomarker of Huntington's disease and stomach cancer. [provided by Alliance of Genome Resources, Apr 2022]
MT-CO1 (HGNC:7419): (mitochondrially encoded cytochrome c oxidase I) Contributes to cytochrome-c oxidase activity. Predicted to be involved in electron transport coupled proton transport and mitochondrial electron transport, cytochrome c to oxygen. Part of mitochondrial respiratory chain complex III and mitochondrial respiratory chain complex IV. [provided by Alliance of Genome Resources, Apr 2022]
TRND (HGNC:7478): (mitochondrially encoded tRNA aspartic acid)
TRND Gene-Disease associations (from GenCC):
  • mitochondrial disease
    Inheritance: Mitochondrial Classification: MODERATE Submitted by: ClinGen

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ACMG classification

Classification was made for transcript

Our verdict: Pathogenic. The variant received 7 ACMG points.

PS3
For more information check the summary or visit ClinGen Evidence Repository.
PS4
For more information check the summary or visit ClinGen Evidence Repository.
PP1
For more information check the summary or visit ClinGen Evidence Repository.

Transcripts

RefSeq

Gene Transcript HGVSc HGVSp Effect Exon rank MANE Protein UniProt
TRNS1unassigned_transcript_4800 c.49dupG p.Val17fs frameshift_variant Exon 1 of 1
COX2unassigned_transcript_4802 c.-121_-120insC upstream_gene_variant
TRNDunassigned_transcript_4801 c.-53_-52insC upstream_gene_variant
COX1unassigned_transcript_4799 c.*20_*21insC downstream_gene_variant

Ensembl

Gene Transcript HGVSc HGVSp Effect Exon rank TSL MANE Protein Appris UniProt
MT-TS1ENST00000387416.2 linkn.49dupG non_coding_transcript_exon_variant Exon 1 of 1 6
MT-CO2ENST00000361739.1 linkc.-121_-120insC upstream_gene_variant 6 ENSP00000354876.1
MT-CO1ENST00000361624.2 linkc.*20_*21insC downstream_gene_variant 6 ENSP00000354499.2
MT-TDENST00000387419.1 linkn.-53_-52insC upstream_gene_variant 6

Frequencies

Mitomap GenBank
The variant is not present, suggesting it is rare.
Alfa
AF:
0.000337
Hom.:
3

Mitomap

Disease(s): MM-/-DMDF-modulator,PEM-/-AMDF-/-Motor-neuron-disease-like
Status: Reported,See-7471insC
Publication(s): 16368237

ClinVar

Significance: Pathogenic
Submissions summary: Pathogenic:12Other:1
Revision: reviewed by expert panel
LINK: link

Submissions by phenotype

Mitochondrial disease Pathogenic:2
Nov 14, 2022
ClinGen Mitochondrial Disease Nuclear and Mitochondrial Variant Curation Expert Panel, ClinGen
Significance:Pathogenic
Review Status:reviewed by expert panel
Collection Method:curation

The m.7471dup variant in MT-TS1 has been reported in >16 unrelated individuals with primary mitochondrial disease across several haplogroups. This variant is most commonly associated with sensorineural hearing loss however affected individuals can also have other features. Affected individuals have been reported with features including MELAS, cerebellar ataxia, myoclonus, epilepsy, white matter disease, intellectual disability, cerebellar atrophy, exercise intolerance, and hypotonia; and this variant has been seen in affected individuals in the homoplasmic and heteroplasmic states (PS4; PMIDs: 7581383, 9708714, 9832034, 9778262, 9778273, 10094190, 15482956, 11378827, 15292920, 15482956, 11378827, 15292920, 1533431, 16368237, 17637808, 15833431, 16368237). This variant segregated with disease in multiple affected members in multiple families and several healthy family members had lower to undetectable levels of the variant (PP1_moderate, PMIDs: 7581383, 9708714). Cybrid studies supported the functional impact of this variant (PS3_supporting; PMID: 10545608). There are no de novo occurrences to our knowledge. There are no in silico predictors for this type of variant in mitochondrial DNA. In summary, this variant meets criteria to be classified as likely pathogenic however this Expert Panel elected to modify the classification to pathogenic given the overwhelming evidence of pathogenicity. Furthermore, the mitochondrial DNA variant specifications are known to not be optimized for pathogenic variants that tend to be homoplasmic in nature, have reduced penetrance, and/or variants that are insertions. This classification was approved by the NICHD/NINDS U24 ClinGen Mitochondrial Disease Variant Curation Expert Panel on November 14, 2022. Mitochondrial DNA-specific ACMG/AMP criteria applied(PMID: 32906214): PS4, PP1_moderate, PS3_supporting.

Jan 20, 2023
Illumina Laboratory Services, Illumina
Significance:Pathogenic
Review Status:criteria provided, single submitter
Collection Method:clinical testing

The MT-TS1 m.7465dup (n.49dup) variant, also referred to as m.7471dup and m.7472insC in the literature, results in the insertion of a nucleotide at position m.7465. Across a selection of available literature, this variant has been reported in at least 22 unrelated individuals with primary mitochondrial disease across several haplogroups (PMID: 7581383; 9708714; 9778262; 9778273; 9832034; 10094190; 11378827; 15292920; 15482956; 15833431; 16368237; 17637808). This variant has been associated with isolated sensorineural hearing loss; however, affected individuals can also have other features including MELAS, cerebellar ataxia, myoclonus, epilepsy, white matter disease, intellectual disability, cerebral and cerebellar atrophy, exercise intolerance, and hypotonia. This variant has been seen in affected individuals in homoplasmic and heteroplasmic states. This variant segregated with disease in multiple affected members in multiple families and several healthy family members had lower to undetectable levels of the variant (PMIDs: 9708714; 10094190; 15833431; 16368237). The variant is reported in the Genome Aggregation Database (version 3.1.2) at a homoplasmic frequency of 0.000089 and a heteroplasmic frequency of 0.000462, which may be consistent with reduced penetrance and tissue-specific heteroplasmy of the variant. Cybrid studies supported the functional impact of this variant (PMID: 10545608). Based on the available evidence, the m.7465dup (n.49dup) variant is classified as pathogenic for primary mitochondrial disease.

not provided Pathogenic:2
Dec 18, 2023
Clinical Genetics Laboratory, Skane University Hospital Lund
Significance:Pathogenic
Review Status:criteria provided, single submitter
Collection Method:clinical testing

Jun 17, 2021
Institute of Medical Genetics and Applied Genomics, University Hospital Tübingen
Significance:Pathogenic
Review Status:criteria provided, single submitter
Collection Method:clinical testing

MELAS syndrome Pathogenic:2
Feb 06, 2025
3billion
Significance:Pathogenic
Review Status:criteria provided, single submitter
Collection Method:clinical testing

The variant is observed in the gnomAD v4.1.0 dataset (total allele frequency: 0.046%, homoplasmic allele frequency: 0.009%). Predicted Consequence/Location: Mitochondrial variant Functional studies provide strong evidence of the variant having a damaging effect on the gene or gene product (PMID: 15482956, 15833431, 18977334, 7581383, 9778262). The variant has been observed in multiple (>3) similarly affected unrelated individuals (PMID: 10094190, 15292920, 15482956, 17637808, 7581383, 9708714, 9778262). The variant has been reported to co-segregate with the disease in at least 7 similarly affected relatives/individuals in at least two unrelated families (PMID: 10094190, 15482956, 17637808, 9708714, 9778262). The variant has been reported at least twice as pathogenic with clinical assertions and evidence for the classification (3billion dataset/ClinVar ID: VCV000042226). Therefore, this variant is classified as Pathogenic according to the recommendation of ACMG/AMP guideline.

Jul 12, 2019
Wong Mito Lab, Molecular and Human Genetics, Baylor College of Medicine
Significance:Pathogenic
Review Status:criteria provided, single submitter
Collection Method:clinical testing

The NC_012920.1:m.7471dupC variant in MT-TS1 gene is interpreted to be a Pathogenic variant based on the modified ACMG guidelines (unpublished). This variant meets the following evidence codes reported in the guidelines: PS3, PS5

Mitochondrial non-syndromic sensorineural hearing loss Pathogenic:1Other:1
GeneReviews
Significance:not provided
Review Status:no classification provided
Collection Method:literature only

May 01, 2001
OMIM
Significance:Pathogenic
Review Status:no assertion criteria provided
Collection Method:literature only

MERRF syndrome Pathogenic:1
Jun 30, 2025
Institute of Human Genetics, University of Leipzig Medical Center
Significance:Pathogenic
Review Status:criteria provided, single submitter
Collection Method:clinical testing

Criteria applied: PS4, PP1_MOD, PS3_SUP

Mitochondrial complex IV deficiency, nuclear type 1 Pathogenic:1
May 04, 2022
Mendelics
Significance:Pathogenic
Review Status:criteria provided, single submitter
Collection Method:clinical testing

Deafness, sensorineural, with neurologic features Pathogenic:1
May 01, 2001
OMIM
Significance:Pathogenic
Review Status:no assertion criteria provided
Collection Method:literature only

Mitochondrial cytochrome c oxidase deficiency Pathogenic:1
May 01, 2001
OMIM
Significance:Pathogenic
Review Status:no assertion criteria provided
Collection Method:literature only

Rare genetic deafness Pathogenic:1
Oct 04, 2011
Laboratory for Molecular Medicine, Mass General Brigham Personalized Medicine
Significance:Pathogenic
Review Status:criteria provided, single submitter
Collection Method:clinical testing

The 7471_7472insC variant in the MTTS1 gene has been reported in 14 probands aff ected with either hearing loss, neurological abnormalities, or both, is absent i n 1381 controls, and cosegregates with disease in affected family members (Tiran ti 1995, Ensinke 1998, Jaksch 1998, Verhoeven 1999, Fetoni 2004, Jacobs 2005, Pu lkes 2005, Cardaioli 2006, Leveque 2007, Swalwell 2008, Valente 2009). In additi on, functional analyses of muscle biopsies from affected individuals and in vitr o mitochondrial clones harboring the variant reveal deficiency in COX and defect ive mitochondrial respiration (Tiranti 1995, Jaksch 1998, Fetoni 2004, Pulkes 20 05, Valente 2009). In summary, this variant meets our criteria to be classified as pathogenic.

Computational scores

Source: dbNSFP v4.3

Name
Calibrated prediction
Score
Prediction
PhyloP100
3.9

Publications

Other links and lift over

dbSNP: rs111033319; hg19: chrM-7466; API